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Towards Health Mass-Self Communication

On 26th October I have the opportunity to act as a moderator in a symposium called Communication in health 2.0, organized by the Institute for Continuing Education (IDEC) and the University of Pompeu Fabra’s Science Communication Observatory (OCC). First of all, I would like to thank Vladimir de Semir, Gemma Revuelta and Clara Armengou for their invitation and their organization of the symposuum. I really think that University has a role as a hub to disseminate and research about this topic in collaboration with the rest of the actors (industry, healthcare providers, professionals, Government,…).

Act as a moderator gave me the opportunity to work on the Health Communication field as a framework of part of the research I have been doing and develop the first step towards the conceptualization of Health Mass-Self Communication.

Measuring digital development for policy-making: Models, stages, characteristics and causes

Yesterday I had the pleasure to attend the defence of Ismael Peña‘ thesis Measuring digital development for policy-making: models, stages, characteristics and causes, “which deals about the digital economy and whether governments should help in its development for it might have a positive impact on the real economy and on the society at large”.

Dissertation supervisor: Tim Kelly

Composition of the committee:

President: Tim Unwin (University of London)
Secretary: Joan Torrent Sellens (UOC)
Members: Robin Mansell (London School of Economics)
Bruno Lanvin (INSEAD)
Laura Sartori (Università di Bologna)

Substitutes:
Gustavo Cardoso (Instituto Superior de Ciências do Trabalho e da Empresa)
Rosa Borge Bravo (UOC)

CONGRATULATIONS Dr. Peña-López. I’m proud to work with you in the same research group I2TIC.

World Internet Project and Health

I’m so excited about World Internet Project 2009 Macao (July 8 - 10) where I’m presenting a paper done with Dra. Rita Espanha entitled Health and the Internet: Autonomy of the User.

Abstract:

Information access and distribution are growing and the ways in which this information and knowledge democratisation occurs are many, scattered and diverse. Individual health, and its daily management, never involved as much information as nowadays.

The aims of this paper are: to identify and characterise the role of daily information and communication practices for health individual management in Portugal and to identify and characterise some trends on a global scale of the Internet use for health purpose.

Considering all Internet activities within WIP database 2007, cluster analysis was carried out to define an e-readiness index to the Network Society. Citizens who have more probability to be in worse health status due to their age are those who have also more probability to be less e-readiness or even dropped out of the Internet.

Parallel to the “informed patient” concept, we must consider also in our approaches the “generation divide” and the “e-readiness divide” concepts associated with health.

The World Internet Project (WIP) is a major, international, collaborative project looking at the social, political and economic impact of the Internet and other new technologies. Conceived as the study of the Internet that should have been conducted of television in its early days, the WIP believes that the Internet’s influence will ultimately be far greater than television. Whereas television has mostly been about entertainment, the Internet has the potential to transform how the world plays, works and learns… +info

I’m working on the presentation but after the meeting it will be uploaded. Finally I would like to thank Imma Tubella, Carlos Tabernero and specially Joan Torrent, colleagues from Internet Interdisciplinary Institute (IN3) at Open University of Catalonia, for their support to travel to Macao.

Doctors, Citizens and the Internet: Brown Bag Seminar Series - SATSU

On 23rd June I had the pleasure to present some of the results of our research in the Brown Bag Seminar Series at Science and Technology Studies Unit (SATSU) in the Department of Sociology at University of York where I’m as a visiting researcher.

I have to thanks all the people who were there for their questions and comments. Special thanks to Michael Hardey who helps me to improve the statistics labels. Now we have to keep working on some papers using these analysis.

From “Disconnected Citizen to “Networked Citizen”

From Disconnected Citizen to Network Citizen

From “Utilized ICT physicians” to “Integrated ICT Physicians”

From Utilised ICT Physician to Integrated ICT Physician

Of course, any comment or suggestion will be very welcomed indeed

Healthcare system 2.0: from industrial healthcare to network healthcare

I just want to share my presentation “Healthcare system 2.0: from industrial healthcare to network healthcare”. It could be also entitled “From information to interaction, from citizen to networked citizen, from physicians to networked physicianas… Healthcare in transition to Network Society”. I have to congratulate  Kroniker, Sanidad 2.0 and Healthcare Department of Euskadi, specially Dr. Rafael Bengoa, for their wonderful job as organizers and support of the conference.

My presentation was based on a research carried out in Catalonia. Our analysis suggests a transition from industrial healthcare system to network healthcare systems with clear gaps and divides:

  • From plane and low quality health web pages (more than 50% of the 1240 web pages analysed) to interactive health websites (just 5% of them)
  • From excluded citizens who do not have access to ICT, do not use the Internet and do not care about them, to network citizens, who have access to many ICT devices and use the Internet to read/write, share ideas and socialize.
  • From traditional physicians (70%) to network physicians (30%), who use Hospital Information System intensively, who use the Internet to spread information, to search national and international research information, to communicate with patients and healthcare professionals to sum up the Internet is embedded on their work routines as interactive space.

As you have already noticed the presentation is in Spanish. I have translated the last two slides. The first one summarizes the drivers of this transition from citizens and healthcare professionals point of view:

transition

The second one is  a framework for policy-makers to manage this change developed by Ismal Peña, another member of Interdisciplinary Research Group on ICTs (i2TIC), based on Measuring digital development for policy-making: Models, stages, characteristics and causes. The role of the government

framework ICTlogy

We have to keep working into this framework to adapt it better to healthcare system. Although I think It perfectly fixes within the healthcare system.

Mapping the transition of the Catalan Health system to Network Society. A work in progress. How was research developed?

From May to September,  I’m a visiting researcher at Science and Technology Studies Unit (SATSU).

SATSU, in the Department of Sociology, “is a specialist unit dedicated to rigorous analysis of the social dynamics informing contemporary and prospective science and technology. It has an established international reputation as a centre of excellence in three areas: the sociology of the biosciences, mobilities, informatics and space, and science and technology governance. the Department of Sociology” directed by Andrew Webster.

As a part of my visiting at SATSU, Darren Reed has invited me to teach a seminar in his course entitled Exemplary Empirical Studies in Social Informatics in the MSc Social Informatics and Management. My intervention was about how the research I have been involved in the past years was developed. So it is not about the research results but about research processes. Here goes the slides:

Finally, I would like to thank  all the wonderful people I have met at SATSU for their kindness.  It was so easy to settle into the unit. Of course, special thanks indeed to Michael Hardey.

Thesis defense: The Internet, Health and Network Society

On 23rd January 2009 I defended my PhD thesis “Internet, health and society. Analysis of the uses of internet related to health in Catalonia” supervised by the IN3’s Director and UOC Research Professor Manuel Castells. I’m translating my slide presentation, it takes time because It has many figures, just take a look at the Spanish version, and my talk to English but I would like to share the Spanish version of my presentation and the main structure in English.

Objectives:

  • Identify and characterize the presence of the actors of the Catalonian healthcare system in the Internet
  • Identify, characterize and explain the determinants of the use and social practices that the principal actors of the healthcare system carry out through ICT, specifically that of the Internet

Research questions

  • What type of quality information and applications related with Health are offered on the Internet?
  • How can the presence of the healthcare system’s actors on the Internet be characterized?
  • Which are the main barriers and incentives of patient support groups for Internet use?
  • What are the ICT uses of the citizens with regard to health and how can they be characterized?
  • What are the consequences of citizen ICT use, specifically that of the  Internet, regarding the management of their health and the relationship with their healthcare professionals?
  • What are the determinants (technological and non-technological) of the demand of healthcare services by citizens via the Internet?
  • What are the uses of ICT, especially the Internet, by healthcare professionals  and how can they be characterized?
  • What are the determinants (technological and non-technological) of the uses of the Internet by health care professionals (Physicians, Nurses and Pharmacist)?

General Hypothesis:

  • The interaction between social structure, the increase of information flow and ICT causes a transformation in social practices and in the behaviour of the actors of the  healthcare system

Sub Hyphotesis

  • The Internet is basically an information space on Health and not an interaction space between the actors of the healthcare system; therefore health webs are characterized by the offer of information resources, by the lack of applications related with communication or services and by levels of quality associated with the actor who provides the resource
  • The interrelation between access, use and assessment of ICT, healthcare services demand and the capacity of the individuals to take decisions over their own health or those closest to them determines the use of the Internet to access to the health system, a new patient profile called the e-patient
  • The interrelation between the intensive use of ICT, specially the Internet, the positive assessment by healthcare professionals of these technologies in relation with their work activities and their patients, the intensive use of the information and professional work oriented towards research determines a new professional profile called the  Networked healthcare professional.

Methodology

This thesis has verified that:

  • The Internet constitutes an information space on health and not an interaction space between the various actors in the healthcare system; consequently, health webs are characterized by the offer of resources related with information, the lack of applications related with communication and services, and certain levels of quality associated with the actor that offers the resource.
  • The interaction between access, use and evaluation of ICT; the demand of healthcare services and the capacity of the individuals to take decisions over their own health and those closest to them, determines the use of the Internet to have access to the healthcare system, i.e. determining a new profile of patient that we have called the e-patient.
  • The interrelation of the intensive use of ICT, especially that of the Internet; the positive assessment of these technologies in relation with their work and their patients; the intensive use of information, and a professional activity oriented towards research determines a new professional profile which we call the networked healthcare professional (networked physician, networked nurse, networked pharmacist)

Future lines of research

  • Analysis of the determinants of the processes of innovation of the healthcare systems in relation to ICT
  • Analysis of the determinants of the state of health in the context of the Network Society
  • Analysis of public policies in the context of the Network Society
  • Analysis of the technological dynamics and interactions, economic and social of biomedical research in the context of the Network Society

Spanish presentation

You can check all the references here or on my personal reference manager. Ismael Peña and Oriol Miralbell have blogging and comment the event. Finally, this thesis is just the beginig of a research career. If you have found any interesting point or something to disscuss or compare, let’s share. As Liverpool supporters You’ll Never Walk Alone.

Internet, Sex and “Men who have sex with men” Workshop

Today, I have been invited by StopSida to participate in a workshop about “Internet, Sex and Men who have sex with men“. Here goes my presentation (in Spanish) which tries to show an overview about the Internet, Citizens and Health: challenges and opportunities.

Finally, I would like to share my presentation and also to thank Katy and Percy for the wonderful organization of the event that allows us to think and learn about prevention and public health and the roles of NGO, Government and Private sector (as Bakala.org) on these issues. Due to the dynamic of the workshop the debate was very interestig, I wil try to translate to English some of my notes and also some of the participants’ interventions.

Internet Research 9.0: Rethinking Community, Rethinking Space. Key speaker: Mimi Ito

Notes from the conference: Internet Research 9.0: Rethinking Community, Rethinking Space. Copenhagen October 15 – 18, 2008. Mimi Ito: Hanging Out, Messing Around and Geeking Out: Youth Participation in Networked Publics.

Mimi Ito is a cultural anthropologist studying new media use, particularly among young people in Japan and the US. Her research right now focuses on digital media use in the US and portable technologies in Japan. Her last works published are: Networked Publics and Beyond Barbie® and Mortal Kombat: New Perspectives on Gender and Gaming. I strongly recommend the reading of her blog.

Her presentation was based on Digital Youth Research project:

Since the early 1980s, digital media have held out the promise of more engaged, child-centered learning opportunities. The advent of Internet-enabled personal computers and mobile devices has added a new layer of communication and social networking to the interactive digital mix. While this evolving palette of technologies has demonstrated the ability to capture the attention of young people, the innovative learning outcomes that educators had hoped for are more elusive. Although computers are now fixtures in most schools and many homes, there is a growing recognition that kids’ passion for digital media has been ignited more by peer group sociability and play than academic learning. This gap between in-school and out-of-school experience represents a gap in children’s engagement in learning, a gap in our research and understandings, and a missed opportunity to reenergize public education. This project works to address this gap with a targeted set of ethnographic investigations into three emergent modes of informal learning that young people are practicing using new media technologies: communication, learning, and play +info.

Mimi Ito stars with the team members of the project and with the objectives:

The first objective is to describe kids as active innovators using digital media rather than as passive consumers of popular culture or academic knowledge.

The second objective is to think about the implications of kids’ innovative cultures for schools and higher education and to engage in a dialogue with educational planners.

The third objective is to advise software designers about how to use kids’ innovative approaches to knowledge and learning in building better software.

Then she explains the methodology based on ethnographic research in both local neighborhoods in Northern and Southern California, and in virtual places and networks such as online games, blogs, messaging, and online interest groups. Mimi Ito also remarks the amount of data collected: 594 semi structure interviews; 79 informal interviews; 67 groups; 28 diary studies; 4146 questionnaires and also more than 5000 hours of observation of 10468 profiles; 15 on-line forums; 389 videos; 50 events and classroom observation.

After that she introduces to the audience the term networked publics as “an alternative to terms such as audience or consumer. Rather than assume that everyday media engagement is passive or consumptive, the term publics foregrounds a more engaged stance. Networked publics takes this further; now publics are communicating more and more through complex networks that are bottom-up, top-down, as well as side-to-side. Publics can be reactors, (re)makers and (re)distributors, engaging in shared culture and knowledge through discourse and social exchange as well as through acts of media reception”.

Mimi Ito remarks that Youth Networked Publics like traditional youth publics are based on: local scale of interaction, many to many and peer to peer forms of participating, sharing and learning. But unlike traditional youth publics are also based on: accesibility 24/7, persistence, networked peer space, access to more specialized and niche publics, broader contexts for publication and privacy.

Networked publics are sources of diversity about identity, culture and practice. Further beyond  access issues, Mimi Ito identifies two main drivers:

1. Friendship-driven learning and participation: peer to peer sharing and reputation.

Kids prefer to hang out, participate, socialize off-line but time, space and structural restrictions encourage them to go on-line. Research results reveals that most of the kids prefer to meet people first off-line and after that face to face meeting go on-line. Otherwise, you can be consider as a freak or a geek by your own friends “Meeting people first on-line is not cool”.

Mimi Ito uses the term peer pressure to identify some practice among kids “If I put someone in my top ten friend on Facebook or MySpace, that someone is supposed to do the same with me”. On-line reputation has consequences on off-line reputation. Another way of peer pressure was the consequences of private data available on SNS as amplifiers of “drama” thinking about the changes on engaged or falling in love in the personal profile.

Finally, Mimi Ito states that kids share social practice… they help each other to create, produce and distribute content through social technology.

2. Interest-driven learning and participation. Still a minority of youth is driven by interest. Two case studies based on FANSUBBING and ANIME MUSIC VIDEOS.

After the explanation of these two case studies Mimi Ito finishes her talk with some considerations about the diversity in genres of youth participation on-line;  peer based learning, participation and reputation; the scale of networked communities and the youth access to broader audiences; new forms of litarecy and media social practice used by youth to produce knowledge without the constrictions of the adul world.

I really enjoy Mimi Ito speech and her work but I wonder why her research project does not take into account the traditional categories like education level, parents’ wages, family structure,… Do they matter? Am I old fashion?

Update - Video Mimi Ito Keynote @ IR9.0

Drojnet International Seminar presentation

As I mentioned before, I have been invited to participate in the International Seminar “Aplicación de las nuevas tecnologías a la prevención y asistencia en adicciones (”New technologies applications to prevention and assistance of addictions” (26th and 27th, June). Here goes my presentation: