Based on the online survey Citizens and ICT for Health in 14 European countries (14000 Internet users were surveyed) and supported by Social determinants of Health and ICT for Health (eHealth) conceptual framework, therefore based on the results of empirical research, I have tried to summaries the lessons learned in the following eHealth steps.

SUMMARY
Full draft report
Ppt presentation

I.    Background
The Citizen Panel Survey carried out in SIMPHS2 to better assess users and patients’ needs and expectations with regard to ICT for health, directly supports the objectives of the Digital Agenda in the area of eHealth which are to both cope with societal challenges and create opportunities for innovation and economic growth by reducing health inequalities, promoting active and healthy ageing and increasing empowerment. It also contributes to the goals of the European Innovation Partnership on Active and Healthy Aging which addresses the societal challenge of an ageing population focusing on the main areas of life events (Prevention, Care and cure and Independent living) with the following expected results:

• An improvement of the health status and quality of life of Europeans, especially older people;
• An improvement of the sustainability and efficiency of health and social care systems;
• Boosted EU competitiveness through an improved business environment for innovation

In this policy context the analysis of users’ demand undertaken through the SIMPHS2 Citizen panel survey aims to:

• develop typologies of digital healthcare users and measure the impact of ICT and the Internet on health status, health care demand and health management.
• identify factors that can enhance or inhibit the role and use of Personal Health Systems from a citizen’ s perspective with special emphasis on mHealth, RMT, disease management, Telecare, Telemedicine and Wellness.

To reach these objectives, we started by defining a theoretical framework for policy-making, which was used to design and gather relevant information. A multivariate statistical analysis was subsequently carried out to identify the underlying conceptual dimensions emerging from the data collected. Key relationships between concepts (underlying dimensions) were identified to understand ICT for Health as a complex ecosystem. We concluded with some lessons learned.

II.    Conceptual framework: Towards social determinants of ICT for Health

Two frameworks are at the root of our own conceptual framework “Towards social determinants of ICT for Health”. One is the WHO Commission on Social Determinants of Health Framework which summarises how “social, economic and political mechanisms give rise to a set of socioeconomic positions, whereby populations are stratified according to income, education, occupation, gender, race/ethnicity and other factors; these socioeconomic positions in turn shape specific determinants of health status (intermediary determinants) reflective of people’s place within social hierarchies; based on their respective social status, individuals experience differences in exposure and vulnerability to health-compromising conditions”. While this framework does not relate directly to ICT for Health, the structural determinants perfectly overlap the core argument of personal and positional categories of and distribution of resources in van Dijk’s “Causal and Sequential Model of Digital Technology Access by individuals in Contemporary Societies” which is the second framework in which our approach is rooted.

As a result  and as illustrated in the next we defined “Towards social determinants of ICT for Health” as follows:

• Social determinants of health and health inequalities, therefore structural and intermediary determinants produce different levels of ICT access (motivation, material, skills and usage).
• Unequal access to ICT will generate different levels of ICT for Health access as well as different levels of willingness to use ICT for Health.
• ICT for Health access depends on the properties of ICT and the relationship among Motivation; ICT for Health readiness and Internet Health information.
• Motivation includes Triggers, Empowerment and Barriers
• ICT for Health readiness includes Awareness, Material access; Skills and Usage
• ICT for Health Assessment includes how individuals use and evaluate this type of technologies for themselves or for others (social life of information) as well as their perception about usefulness and learning.
• ICT for Health Access gives rise to different level of Participatory Health through the utilisation (individually and socially) of ICT for Health in daily life and behavioural changes due to the ICT for Health impact on: Health management; Health care demand and Health care quality
• These impacts could modify both structural and intermediary determinants and distribution of health and well-being.

III.    Online panel survey technical information

Based on the above framework, we gathered data through a questionnaire which we designed and structured around five main blocks :

• Block A: Health status and health care and social care services use
• Block B: ICT for Health Motivation and Health Information sources
• Block C: ICT Access
• Block D: ICT for Health Readiness and Evaluation
• Block E: Socio demographic profile of participants

To reach our target population, we have used the Internet as a methodological tool. Survey research is becoming a frequently used methodology due to the advancement of computer hardware, software and increasing access to the Internet. Furthermore, online surveys offer a valid alternative to the postal, telephone or face-to-face surveys as long as technical, methodological, ethical and legal considerations are taken into account. Table 1 resumes the technical characteristics of the study.

Technical information

Population: Citizens aged from 16 to 74 years old who have used the Internet in the last three months.
Scope of countries: Austria, Belgium, Germany, Denmark, Estonia, Finland, France, Italy,    Netherlands,  Sweden, Slovenia, Slovakia, Spain, United Kingdom
Type of survey: Online
Sample size:    1,000 interviews per country - 14,000 interviews in total.
Quotas: Country - Gender (Female/Male) - Age Group (16-24/ 25-54/ 55-74)
Sampling error +0.85% for overall data and +3.16% for country-specific data. In all cases, a maximum indeterminate probability (p=q=50), for a confidence level of 95.5% is applicable for each one of the reference populations
Weighting: Proportional allocation for each country. Weighting by country to be able to interpret the overall data.
Sampling: Individuals have been sampled in a completely random manner.
Fieldwork period:  20 July 2011 to 20 August 2011

It should be noted that the data analysed in this report relates to an Internet user population which also forms part of online panels. Accordingly, it can be deduced that the respondents’ profile in terms ICT uses is slightly more advanced than that of the general population of the surveyed countries. However the underlying dimensions identified and their relationship remain valid.

IV.    ICT access

With respect to Internet based activities, the sampled population mainly uses it to search for information (68% every day), sending e-mails with attachments (41%), online banking (20%), social networks (39%) and instant messaging (23%). Internet activities are linked with the male gender, the youngest age groups, a university education, self-employment and entrepreneurs, students, population density and a good state of health.

The factor analysis helped identify the main underlying dimensions of Internet activities. Four factors have emerged:

• Basic uses
• Individual uses
• Social - Web 2.0 uses
• Tech uses

These factors represent a social gradient of Internet activities from the easiest use of the Internet (basic uses) to the most sophisticates activities (tech uses).

V.    ICT for Health Motivation

Individuals were asked about the triggers to utilise ICT for Health. More than a third of the sampled European population indicates a significant use of ICTs in health to better understand a health problem or disease (39%), to find additional sources of information (36%) and to develop knowledge and personal satisfaction (35%). A little further behind, but still with a relevant frequency, there is the perception that ICTs in health are very useful to help a family member or a friend who is ill (31%), to prevent illnesses or to adopt a more healthy lifestyle (28%), to find a solution to or a treatment for a health problem (28%), to obtain different points of view about an issue (22%), and to access an online health service (21%). Finally, and as a counterpoint, only 11% of European citizens give much importance to the use of ICTs in health for participating in online discussions.

With respect to the socio-demographic characteristics of the population, the perception of the importance of ICT in health as triggers is much more positive for women, young people, the middle aged, those with a tertiary education, the employed, students, and people in a bad state of health or with long standing illnesses.

From these items two factors have emerged:

• social and services oriented and
• individual oriented uses.

Empowerment, broadly understood as the development of personal involvement and responsibility is one of the goals of prevention, promotion and protection in health. This definition assumes that responsibility is a more active form of control while competence refers to aptitudes or qualities that make it possible to be more autonomous and take a role in decision-making. Factor analysis identified these two dimensions of empowerment Moreover, three different perspectives of personal empowerment seem to coexist with respect to Health:

• ability to comply with expert advice (professional perspective)
• Self-reliance through individual choice (consumer perspective)
• Social inclusion through the development of collective support (community perspective)

Overall, this greater digital empowerment for the European citizens when it comes to their health and the healthcare professionals is linked with higher education levels, the worst states of health and the existence of long-standing illnesses

Finally, individuals were asked about the barriers to utilise ICT for Health. Lack of privacy (52%), security (51%), reliability (47%) and trust (46%) were the four main barriers for ICT uses for health indicated by the sampled European population to be very important. Other justifications were the lack of liability (38%), health literacy (36%), knowledge (33%), access to ICTs for health (29%), motivation and interest (28%), and the lack of digital skills (24 %).

Firstly, women are much more sensitive to barriers to the ICT use for health than men, particularly in terms of a lack of confidence. Similarly, the perception of barriers to ICT use for health is also much more evident in older people, those with lower levels of education and the inactive. Lastly, it is also worth highlighting that the presence of long standing illnesses is also very sensitive to lack of confidence.

The underlying dimensions of these items are:

• Lack of confidence and
• Lack of readiness.

VI.    ICT for Health usage

When it comes to specifically using the Internet for health and wellness, the research has provided interesting information, with notable relative differences. The main use of the Internet for health is for individual information searches, rather than sharing information, communicating or interacting about health and more particularly information searches about physical illnesses or conditions.

Over half of the sampled European citizens have never used the Internet to buy medicine or vitamins online (56% of the total); participated in online support groups for people with the same health issue (60%), used social networking sites for health and wellness issues (58%); used e-mail or websites to communicate with a doctor or their office (58%); analysed the privacy policy for personal information in medical websites (52%); explained a medical issue online in order to make contact with an e-health medical service (61%) or with other users (58%); disclosed medical information on social networking sites (67%); or disclosed medical information on websites to share pictures, videos, or movies (67%).

The specific use of ICTs in the health sector is still quite limited among the sampled European citizens. Around three-quarters of the sampled population have never experienced any of the specified ICTs for health uses: 79% of individuals have never made an online consultation through videoconference with healthcare professionals. 75% have not received medical or clinical tests online either. 77% have not accessed or uploaded medical results via a specialist provider, such as Google Health or Microsoft Vault. 76% have not accessed or uploaded medical results via an Internet application provided by a health organisation. 76.6% have not used health or wellness applications on mobile telephones either. And 73.6% of the sampled population has not used ICT applications to transmit vital signs and other clinical information anytime or anywhere.
With respect to the remaining socio-demographic factors, the analysis shows homogeneity in terms of the overall use of ICT for health, which is more frequent in the young population, those with a tertiary education, students and the employed, those in densely populated urban areas, people in a bad state of health and those with long standing illnesses.

The factor analysis of ICT for health activities reveals two underlying dimensions:

• ICT for Health oriented towards Information and Communication and
• ICT for Health oriented towards services and devices.

Finally, these items allow us to analyse individuals’ level of awareness, skills and willingness. First of all, individuals were directly asked about their level of awareness. Second, the number of activities carried out by individuals was considered as a proxy for skilled individuals. Third,
individuals who stated they never carry out these activities or were not aware of them were asked about their willingness to carry out these activities. The factor analysis of willingness reveals three underlying dimensions

• Willingness to use Internet Health information
• Willingness to use Web 2.0
• Willingness to use services and devices

These factors are consistent with the underlying dimensions of ICT readiness mentioned before.

VII.    ICT for Health Impact

The study has also provided evidence about the consequences of ICT for Health utilisation. It has to be said that the perceptions are positive overall. 58% of the sampled European population state they agree that ICT use for health allows savings in terms of  cost of travel and time. 56% state that they would be willing to share personal health information with their doctor despite the privacy issue. 55% state that ICTs for health can improve the possibilities for caring for themselves and monitoring their state of health. 55% agree with the fact that ICT use for health leads to greater patient satisfaction. 54% agree that e-health can improve the quality of the medical services received. 50% of the European citizens consider that ICT use for health can change their behaviour towards a healthy lifestyle.

Slightly under half of the sample of European citizens, 43%, agrees that ICT use for health can improve their state of health. 42% consider that they would feel more comfortable and safe if they used a remote monitoring system for their health condition. 42% consider that ICT use for health increases ICT use in other fields of daily life. 32% agree that the use of health services through the Internet substitutes face-to-face consultations with doctors. 32% agree that online health services and face-to-face services are of equal quality. And lastly, 23% of European citizens would be willing to pay for access to Internet health services to improve their state of health or that of their relatives.

Positive attitudes about the impact of ICT for health are more prominent  among the youngest population, those with a tertiary education, and those that live in densely populated areas. The only notable difference between individuals with bad state of health and those with good state of health is the perception by the former that ICT uses for health can improve the quality of health services received (57%). Meanwhile, citizens with long standing illnesses clearly state their favourable perceptions of ICT use for health, as opposed to citizens that do not have long standing illnesses. In particular, they state that ICT use can improve patient satisfaction (56%), improve caring and health condition monitoring skills (57%), save travelling costs and time (60%), and that they are willing to share personal information through the Internet with doctors and health organisations despite privacy issues (60%).

Finally the factor analysis reveals two underlying dimensions:

• Impact on quality of healthcare and healthy behaviours
• Impact on healthcare access.

VIII.    Social determinants of ICT for Health: key dimensions

All items gathered were grouped into underlying dimensions through multivariate statistics following our conceptual framework. This exercise allows us to transform items into concepts and therefore understand the complexity of the ICT for Health ecosystem.

Underlying dimensions of Social determinants of ICT for Health

All above mentioned unveiled the complexity of ICT for Health. To tackle this complexity,   correlation analyses of all dimensions have been performed. The main results of these analyses are summarised in the following figure:

• Social determinants of Health (structural and intermediary), especially education and age, produces different levels of ICT readiness. Advance uses of the Internet such as Tech and Web 2.0 uses are more likely to be carried out by the young, the healthy and the well-educated population while basic uses are mostly performed by the elderly, therefore individuals with worse health status (chronic patients and individuals having reported higher numbers of health problems).
• Unequal ICT readiness generates different levels of motivation. Individuals making more advance uses are triggered by the potential of ICT to facilitate social interaction and services related to health while individuals whose uses are basic or individual are triggered mainly by Internet health information for personal proposes. Furthermore, individuals with the lowest level of readiness (basic uses) and having reported more health problems lack confidence in the use of ICT for Health. Nevertheless, this lack of confidence is counterbalanced by a higher level of empowerment (competence oriented).
• Both ICT for Health usages (Services and Devices and Information and Communication) are specially driven by social and services triggers while individual triggers are only slightly correlated with Information and Communication usages, therefore less advanced uses.
• Both dimensions of Empowerment push ICT for Health usage. Individuals who are more competence-oriented are more inclined to Information and Communication usage while individuals who are more control-oriented are more likely to use Services and Devices. Thus individuals who feel more responsible for their health status are more likely to use Services and Devices while individuals who want to be more autonomous (competence refers to aptitudes or qualities that make it possible to be more autonomous) are more likely to utilise Information and Communication. If we consider individuals’ education, age and health status it looks like Services and Devices are related with well-being and wellness practice, therefore with health prevention and promotion while Information and Communication are more related with illness, therefore with cure and independent living
• All individuals using ICT for Health faced the same barriers; therefore lack of confidence and lack of readiness are not correlated significantly with ICT for Health usages. Nevertheless, lack of confidence is negatively correlated with the ICT for Health impact on the access dimension. Individuals need a certain level of confidence in ICT for Health to go beyond information and communication and engage with services such as RMT, Personal Health Records or videoconference consultation.
• The utilisation of Services and devices is strongly correlated with the perception that ICT would have an impact on both healthcare access and quality and healthy behaviours while the utilisation of Information and Communication is slightly correlated with Quality and healthy behaviours only.
• The number of health problems reported by individuals is only slightly correlated with Information and Communication Usage and it is unrelated to Services and devices utilisation. Therefore, individuals who could take more advantage of Services and devices, due to their health status, are more likely to be oriented towards information and communication usage only.

IX.    Lessons learned

The study reported here reveals the potential of ICT for Health to promote active and healthy individuals and increase empowerment. Even though our findings relate to Internet users, it is worth pointing out that new health inequalities are emerging due to the impact of the “traditional determinants of heath” on ICT readiness.

Therefore, eInclusion policies related to ICT for Health are needed to ensure that individuals with low socio-economic status and more health problems are able to benefit from these types of technologies. These ICT for Health divides specially impact on the elderly. However, there is an opportunity for them to engage with the Information Society through ICT for Health due to the importance of health issues in their daily life.

The relationship between the different typologies of ICT readiness and ICT for Health Motivation and Impact reveal that:

• Young individuals are already using this type of technologies mostly in relation with wellness and healthy live style. These uses enable an entire world of possibilities related with health promotion and prevention, especially considering that young individuals are heavy Web 2.0 users.
• Middle age individuals are also active users of ICT for Health acting as gatekeepers of this type of technologies within the household. Therefore these individuals could act as enablers for others i.e. both for the elderly and the young within households
• The elderly are basically using ICT for Health for information and communication purposes. There is a gap between this type of use and services and devices uses which could be more effective in relation with cure and chronic conditions.

Individuals between 16-54 with chronic conditions, going under long-term treatment and with more than one health problems are more likely to use ICT for Health than individuals without these type of health problems. Individuals between 55-74 who are healthy are more likely to use ICT for Health, especially for Information and Communication, than individuals with worse health status. Therefore, in the short term, this group of individuals will be pushing for health systems to provide them with new solutions (services and devices) when they need to tackle a health problem. This pressure will increase during the next decade when middle age individuals become elderly. Therefore health systems are facing the challenge of having to promote further ICT innovation to answer these new demands. While this is an opportunity to improve both sustainability and efficiency of healthcare system, it is associated with a number of challenges linked to eHealth deployment.

Further, during this transition, health systems can not leave out the elderly who are not active and healthy: this group of individuals can not be omitted as they are the current intensive users of healthcare systems. There is an opportunity to include them in the Information Society by improving ICT readiness and ICT for Health willingness and awareness.

Yesterday I participated in a workshop about Innovation, active patients and Diabetes. I would like to share some of the scientific references I used for my presentation

Glasgow, R. E., Kurz, D., King, D., Dickman, J. M., Faber, A. J., Halterman, E., et al. (2011). Twelve-month outcomes of an Internet-based diabetes self-management support program. Patient Educ Couns, .

Osborn, C. Y., Mayberry, L. S., Mulvaney, S. A., & Hess, R. (2010). Patient web portals to improve diabetes outcomes: a systematic review. Curr Diab Rep, 10(6), 422-435.

Greene, J. A., Choudhry, N. K., Kilabuk, E., & Shrank, W. H. (2011). Online social networking by patients with diabetes: a qualitative evaluation of communication with Facebook. J Gen Intern Med, 26(3), 287-292.

Weitzman, E. R., Cole, E., Kaci, L., & Mandl, K. D. (2011). Social but safe? Quality and safety of diabetes-related online social networks. J Am Med Inform Assoc, 18(3), 292-297.

I would like to thank Joan Carles March (@joancmarch) for the invitation.

Susannah Fox has invited Jessica Mark to post on www.e-patient.net:

This is a guest post by Jessica Mark, healthfinder.gov and Outreach Program Manager, Health Communication and eHealth Team in the Office of Disease Prevention and Health Promotion at the U.S. Department of Health and Human Services

The result of this invitation is entitled Making Strides Toward Improving Health Literacy Online where Jessica Mark highlighted part of the work done by the Office of Disease Prevention and Health Promotion. I really enjoy her post so I commented this:

Wonderful post! I wonder if eHealth literacy could be also a tool to integrate the elderly into Information Society / Network Society. It could be a tool to engage them within the tremendous potential of the Internet for other aspects of their lives. Health contents could be just an excuse to capture their attention (e-awareness) and help them to be online (e-readiness)

and Jessica Mark replied:

Francisco, thank you! I love the idea of eHealth literacy as a catalyst to overall digital literacy too. I’d love to hear/talk more about how that might work.

First of all, I would like to quote the main message of Prof. Jan van Dijk’s book “The Deepening Divide: Inequality in the Information Society”

“The digital divide is deepening where it has stopped widening. In places where most of peopel are motivated to gain access and physical access is spreading, differences   in skill and usage come forward. The more information and communication technology is immersed in society and pervades everyday life, the more it becomes attached to all exiting social divisions. It tends to strengthen them, as it offers powerful tools for everyone engaged. This occurs in the context of the evolving information society and network society. This type of society makes both digital and social divisions even more critical” (…) The digital divide is conceived of as a social and political problem, not a technological one. Physical access is portrayed as only one kind of (material) access among at least four: motivational, material, skills, and usage” (p.2-3)

As a part of his framework for understanding the digital divide, Prof. van Dijk has developed “A Causal and Sequential model of Digital Technology Access by individuals in Contemporary Societies” (p.24). I have included HEALTH as a field of participation in Society.

“The core argument of the book sets particular relationships between four states of affairs, in a process creating more or less information and communication inequality in using digital technologies (p.14):

1. A number of personal and positional categorical inequalities in society
2. The distribution of resources relevant to this type of inequality
3. A number of kinds of access to ICTs
4. A number of fields of participation in society

1 and 2 held to be the causes, and 3 is the phenomenon to be explained, together with 4, the potential consequences of the whole process (…). The core argument can be summarized in the following statements, which comprise the core of a potential theory of the digital divide (p.15):

1. Categorical inequalities in society produce an unequal distribution of resources.
2. An unequal distribution of resources causes unequal access to digital technologies.
3. Unequal access to digital technologies also depends on the characteristics of these technologies.
4. Unequal access to digital technologies brings about unequal participation in society.
5. Unequal participation in society reinforces categorical inequalities and unequal distribution of resources.

The general term access to digital technologies has been divided into four specific, successive kinds of access to digital technology, computes, and the Internet connections (p.21):

1. Motivational access (motivation to use these technologies)
2. Material or physical access (possession of computers and Internet connection or permission to use them and their contents)
3. Skills access (possession of digital skills: operational, informational, and strategic)
4. Usage access (number and diversity of application, usage time)

I have posted before about the importance of eInclusion and eHealth and Inverse Care Law 2.0 talking about the successive kinds of access to digital technology but I have not posted about what are the reasons for not having access to the Internet at home to explain why eHealth literacy could be a catalyst to overall digital literacy among the elderly.

Eurostat’s survey on ICT usage in households and by individuals (2010) stated that the main reasons not to access the Internet at home in almost all countries are related with MOTIVATIONAL ACCESS (does not need to; does not want to) and SKILLS ACCESS

Using Spain as an example I have crossed these reasons by Age:

Individuals between 55-74 emphasised the importance of SKILLS ACCESS and MOTIVATIONAL ACCESS. Following the framework and the figures above mentioned, eHealth literacy could be a catalyst to overall digital literacy among the elderly because:

1. Health could be a motivation for the elderly to use the Internet (e-awareness)
2. This motivation could be used as a trigger to learn how to use this technology (e-readiness)
3. Health professional and/or health care workers as well as relatives and/or friends could facilitate this learning process (ehealth literacy)
4. Use of the Internet for health could open new fields of participation in society for the elderly.
5. These new fields of participation in society could diminish categorical inequalities and unequal distribution of resources.

Thanks Susannah Fox and Jessica Mark for your inspiring post and comments

Recently, EUROSTAT has published the results from ICT usage household survey 2010. I have been analysing these data developing a Digital Health Care Demand in Europe and I would like also to share my analysis of  “individuals who  used the Internet for seeking health information on injury, disease or nutrition” (European Union 27 Member States), inspired by The Power of Mobile written by Susannah Fox. In my case, I would like to emphasis the raise of the inverse care law 2.0 to justify that there is no eHealth without eInclusion, in other words quoting Europe’s Digital Competitiveness Report 2010:

“In addition, while health-on-the-web may empower in various ways those who have access to the internet, the flip side of this is that those without internet access may become relatively more disadvantaged in health matters. For them, the experience may be more one of disempowerment through inability to take advantage of new opportunities. Factors linked to existing health divides, including lower health literacy and less proactive health attitudes, continue to contribute significantly to unequal health experiences and outcomes among less advantaged socio-economic groups. There is already some evidence that these groups may be experiencing a ‘double jeopardy’ as a result of an intertwining of these traditional health divides with the new digital divides.”

Firstly, since 2004 the percentage of individuals who used the Internet for seeking health information on injury, disease or nutrition (total individuals and individuals who have used the Internet in the last three months) has increased, even though from 2009 we can see a slower increase, specially in those who used the Internet. These trends facilitate the identification of a first gap between users and non-users.

To better capture this gap, I have divided the analysis in two part. On the one hand, considering the total individuals we can see the differences between groups of age and level of education.

Furthermore, we can also identify this gap if we focus on age and education together:

On the other hand, considering  individuals who have used the Internet in the last three months, you can see that there is still a difference between groups of age, level of education and both together:

It has to be remarked that most of these trends show that the divides are not going to disappear with time, in some cases these divides will get wider.  Therefore some groups may be experiencing a ‘double jeopardy’ as a result of an intertwining of these traditional health divides with the new digital divides. THUS, THERE IS NO eHEALTH WITHOUT eINCLUSION. Social care, Health care, Health Professionals and Social workers may work together and play a role not just in eHealth or on eInclusion but both to avoid ‘double jeopardy’ and  the inverse care law 2.0.

Note: I have developed the same analysis for all Member States and the gaps are even wider in some countries.

Lately, I have been checking and reading some scientific papers about health communication from:

• Journal of Health Communication: International Perspectives
• Health Communication
• Patients Education and Counselling

The aim is to write a paper based on the presentation done with Michael Hardey:

The purpose of this paper is  to identify how health professionals view public use of the Internet and whether new forms of communication are emerging with the following objectives:

• To identify the utilisation, experience, expertise, barriers and expectations that doctors, nurses and community pharmacists have with the Internet and the email.
• To identify the experience and expectations that doctors, nurses and community pharmacists have with patients using the Internet.
• To identify factors that can enhance the integration of the recommendation of health information available on the Internet and the email within the health professional / patients relationship.

Any reference, suggestion, recommendation… about the presentation will be appreciated.

“Innovative health technologies: health systems in transition Workshop”

Supported by: Internet Interdisciplinary Institute (IN3)

Organized by: Francisco Lupiáñez-Villanueva (Internet Interdisciplinary Institute –UOC) and Michael Hardey (Hull/York Medical School – Science and Technology Studies Unit, Department of Sociology, University of York)

Data: 27th November

Place: UOC IN3 building. Av. Canal Olímpic, s/n. Edifici B3, 08860 Castelldefels (Barcelona)

Daniel López presentation: Reframing telecare: an ethical discussion concerning ageing-in-place, independence and care.

Telecare has been presented by policy-makers and developers as a simple and cheap technology that enable ageing-in-place with autonomy. The aim of this presentation is to critically discuss what ageing-in-place with autonomy mean for elderly people using telecare. According to some results from ethnography conducted 4 years ago in a catalan telecare service, there are different ways of being autonomous enacted and, given that, also different conceptions of the body and of living at home. By presenting these complexities we want to put forward several ethical questions concerning the current telecare developments. First of all, what new arrangements, practices, collectives and relationships of care arise with the implementation of telecare and smart home systems in care for older people? How do these arrangements shape existing care practices? What definitions of care, and good care, are implied and embodied in the new care arrangements? How do these built-in definitions and normativities differ from and change existing practice? What implications do they have for the meanings of place, distance and home in care? These questions, among other, are being discussed in a FP7 project currently carried out by different research teams in Barcelona, Lancaster, Amsterdam and Oslo and coordinated by Maggie Mort. So in order to conclude, I would like to present these questions and make some remarks based on some insights taken from the current fieldwork and from the former research projects.

Daniel López

Assistant Professor at the Universitat Oberta de Catalunya. Currently working on the implementation of new technologies in care settings like Home Telecare from an STS perspective. The main areas of interest are: a) the emergence of new spatialities and temporalities of care; b) the emergence of new practices of caring and security due to the increasing importance of technologies of accountability; and c) the enactment of hybrid forms of autonomy and independence. Currently involved in an FP7 project called “Ethical Frameworks for Telecare Technologies for older people at home (EFORTT) concerned with the implications of the introduction of remote care technologies worn, installed or embedded in the homes of older citizens/frail older people (see http://www.lancs.ac.uk/efortt/index.html) and also a project funded by the Ministerio called CONDEPCIU concerned with the techno-scientific controversies around the new Spanish care policies addressed to elderly/frail people.

“Innovative health technologies: health systems in transition Workshop”

Supported by: Internet Interdisciplinary Institute (IN3)

Organized by: Francisco Lupiáñez-Villanueva (Internet Interdisciplinary Institute –UOC) and Michael Hardey (Hull/York Medical School – Science and Technology Studies Unit, Department of Sociology, University of York)

Data: 26th and 27th November

Place: UOC IN3 building. Av. Canal Olímpic, s/n. Edifici B3, 08860 Castelldefels (Barcelona)

Eulàlia Hernández’s presentation - Providing resources for caregivers trough the Internet.

Internet is a common tool in our daily living that offers new possibilities for communicating and delivering health care treatments. One of these possibilities is to use Internet to create a community where professionals (such as psychologists) and caregivers can work together in order to generate processes to improve the quality of life, by providing caregivers with resources to cope with difficult situations. From this perspective, in this session, two projects aimed to improve quality of life of caregivers will be discussed.

Eulàlia Hernández

Professor of Psychology at the Open University of Catalonia. She is also the head of PSINET research group at the IN3 Institute. Her research focus is the improvement of quality of life in several health problems trough the use of Information and Communication Technologies.

I have read Nijland, N., van Gemert-Pijnen, J. E. W. C., Boer, H., Steehouder, M. F., & Seydel, E. R. (2009). Increasing the use of e-consultation in primary care: Results of an online survey among non-users of e-consultation. International Journal of Medical Informatics, In Press, Corrected Proof.

Abstract

Objective
To identify factors that can enhance the use of e-consultation in primary care. We investigated the barriers, demands and motivations regarding e-consultation among patients with no e-consultation experience (non-users).

Methods
We used an online survey to gather data. Via online banners on 26 different websites of patient organizations we recruited primary care patients with chronic complaints, an important target group for e-consultation. A regression analysis was performed to identify the main drivers for e-consultation use among patients with no e-consultation experience.

Results

In total, 1706 patients started to fill out the survey. Of these patients 90% had no prior e-consultation experience. The most prominent reasons for non-use of e-consultation use were: not being aware of the existence of the service, the preference to see a doctor and e-consultation not being provided by a GP. Patients were motivated to use e-consultation, because e-consultation makes it possible to contact a GP at any time and because it enabled patients to ask additional questions after a visit to the doctor. The use of a Web-based triage application for computer-generated advice was popular among patients desiring to determine the need to see a doctor and for purposes of self-care. The patients’ motivations to use e-consultation strongly depended on demands being satisfied such as getting a quick response. When looking at socio-demographic and health-related characteristics it turned out that certain patient groups – the elderly, the less-educated individuals, the chronic medication users and the frequent GP visitors – were more motivated than other patient groups to use e-consultation services, but were also more demanding. The less-educated patients, for example, more strongly demanded instructions regarding e-consultation use than the highly educated patients.

Conclusion
In order to foster the use of e-consultation in primary care both GPs and non-users must be informed about the possibilities and consequences of e-consultation through tailored education and instruction. We must also take into account patient profiles and their specific demands regarding e-consultation. Special attention should be paid to patients who can benefit the most from e-consultation while also facing the greatest chance of being excluded from the service. As health care continues to evolve towards a more patient-centred approach, we expect that patient expectations and demands will be a major force in driving the adoption of e-consultation.

Summary points

What was already known on the topic?

• The increased public interest in medical information regarding health issues are driving forces for the growth of health services on the Internet. However, the growth of e-consultation in primary care has been minor.
• Access to healthcare and information technology is often most difficult for those populations who need it most. E-consultation can be beneficial for certain patient groups, such as frequent GP visitors and chronic users of medication. Yet, it is unclear whether access to e-consultation is most difficult for these populations.

What did this study add to our knowledge?

• Non-use of e-consultation was primarily due to lack of availability among GPs and to information deficits among patients, such as unawareness of the existence of the service and the possibilities of e-consultation. Proper education and instructions are necessary to increase the use of e-consultation.
• Patient groups who were most motivated to use e-consultation e.g., elderly patients, less-educated patients, chronic medication users and frequent GP-visitors, perceived the greatest barriers towards econsultation.
• Web-based triage systems may be promising, because this study indicates that patients are motivated to use such systems for primary evaluation of medical complaints and for self-care advice.

Again, the results of the empirical research revealed the gap between the potencial of ICTs uses in healthcare and the facts that shape these uses. The inverse care law is still working in the transition of healthcare systems to Network Society.

Today, I have been invited by StopSida to participate in a workshop about “Internet, Sex and Men who have sex with men“. Here goes my presentation (in Spanish) which tries to show an overview about the Internet, Citizens and Health: challenges and opportunities.

Finally, I would like to share my presentation and also to thank Katy and Percy for the wonderful organization of the event that allows us to think and learn about prevention and public health and the roles of NGO, Government and Private sector (as Bakala.org) on these issues. Due to the dynamic of the workshop the debate was very interestig, I wil try to translate to English some of my notes and also some of the participants’ interventions.