The definitive references’ collection of my thesis
“Internet, Health and Society. Analysis of the uses of the Internet related to the health in Catalonia” is the titled of my thesis. I would like to share all the references I have been working with during the last almost four years. Soon, I will be publishing all the thesis (in Spanish and I’ll translate the main results to English) but first I have to defence it following Academia way of life.
A
• Aaron, H. (1991). Serious and Unsable Condition: Financing America’s Health Care. Washington, DC.: The Brookings Institute.
• Ackerknecht, E. H. (1967). Medicine at the Paris Hospital. Baltimore: Johns Hopkins University Press.
• Artís, M., Suriñach, J., et al. (2007). L’aportació del sector sanitari a l’economia catalana. Barcelona: Caixa d’Estalvis de Catalunya.
• Atkinson, T. (1995). Atkinson Review: Final Report. Measurement of Government Output and Productivityfor the National Accounts. New York: Palgrave MacMillan.
• Alonso, J.L., Figuerola, C.G., et al. (2003). “Estudio del Web”. En: Cibermetría: nuevas técnicas de estudio aplicables al Web (27-80). Gijón, España: Ediciones TREA.
• Anderson, C.W. (2003). A call for internet pharmacies to comply with quality standards. Quality & Safety in Health Care, 12(2), 86.
• Anderson, J.G., Rainey, M.R. & Eysenbach, G. (2003). The Impact of CyberHealthcare on the Physician–Patient Relationship. Journal of Medical Systems, 27(1), 67-83.
• Anderson, G.F., Frogner BK, Johns R.A. & Reinhardt, U.E. (2006). Health Care Spending And Use Of Information Technology In OECD Countries. Health Affairs, 25(3), 819–831.
• Armstrong, D. (1995). The rise of surveillance medicine. Sociology of Health & Illness,17(3), 393-404.
• Armstrong, D. (2000). Social theorizing about health and illness. In: Albrecht, G.; Fitzpatrick, R.; Scrimshaw, S. (eds). The Handbook of Studies in Health & Medicine. London: Sage Publications.
• Asociación para la Investigación de Medios de Comunicación - AIMC (2005). 7ª Encuesta AIMC a usuarios de Internet. [artículo en línea]. AIMC. [Fecha de consulta: 18 de enero de 2006]. <http://www.aimc.es/aimc.php>
B
• Balen, M.R. & Jewesson J.P. (2004). Pharmacist Computer Skills and Needs Assessment Survey. Journal of Medical Internet Research, 6(1), e11.
• Barnes, L. & Trudy, R. (2005). Virtual reality or real virtuality: the space of flows and nursing practice. Nursing Inquiry, 12(4), 306–315.
• Bauer, C. (2000). Limiting Factors on the Transformative Powers of E-Mail in Patient-Physician Relationships: A Critical Analysis. Health Communication, 12(3), 239-259.
• Bauer, C. (2000). Quantitive evaluation of Web site content and structure. Internet Research: Electronic Networking Applications and Policy, 10(1), 31-43.
• Beck, U. (1992). Risk Society towards a new modernity. London: Sage Publications.
• Bessell, T.L., McDonald, S. et al. (2002). Do Internet interventions for consumers cause more harm than good? A systematic review. Health Expectation, 5, 28-37.
• Bessell T.L., Anderson J.N., Silagy, C.A., Sansom L.N. & Hiller, J.E. (2003). Surfing, self-medicating and safety: buying non-prescription and complementary medicines via the Internet. Quality & Safety in Health Care, 12, 88–92.
• Blekesaune, M. & Quadagno, J. (2003). Public Attitudes toward Welfare State Policies: A Comparative Analysis of 24 Nations. European Sociological Review, 19(5), 415–427.
• Blume, S. (2003). Medicine, Technology and Industry. In: Cooter, R. & Pickstone, J. Companion to Medicine in theTwentieth Century. London: Routledge
• Braithwaite, D., Emery, J., de Lusignan, S. & Sutton S. (2003). Using the Internet to conduct surveys of health professionals: a valid alternative? Family Practice, 20, 545–551.
• Brandt, A. & Gardner, M. (2003). The Golden Age of Medicine? In: Cooter, R. & Pickstone, J. Companion to Medicine in theTwentieth Century. London: Routledge
• Braverman, P. (2006). “Health Disparities and Health Equity: Concepts and Measurement”, Annual Review of Public Health. Vol. 27, pp. 167-94.
• Brown, P.; McCormick, S. et al. (2004). Embodied health movements: new approaches to social movements in health. Sociology of Health & Illness 26(1):50–80
• Brynjolfsson, E.; Hitt, L.M. (2003). “Computing Productivity: Firm-level Evidence”, Review of Economics and Statistics. Vol. 85, Núm. 4, pàg. 793-808.
• Brodie, M., Flournoy, R.E. et al. (2000). Health Information, the Internet, And The Digital Divide. Health Affaire, 19(6), 255-265.
• Brooks, R.G. & Menachemi, N. (2006). Physicians’. Use of Email With Patients: Factors Influencing Electronic Communication and Adherence to Best Practices. Journal of Medical Internet Research 8(1), e2 <URL: http://www.jmir.org/2006/1/e2/>
• Brown, N. & Webster, A. (2004). New Medical Technologies and Society: Reordering Life. Cambridge: Polity Press.
• Bundorf, M.K., Wagner, T.H., Singer, S. & Bake, C. (2006) Who searches the Internet for Health Information?. Health Research and Educational Trust, 41(3), 819-836.
• Burkell, J. (2004). Health Information Seals of Approval: What do they signify?. Information, Communication & Society, 7(4), 491-501.
C
• Cardoso, G., Espahna, R. et al. (2007). A Saúde na Era da Informação. [artículo en línea]. CIES-ISCTE. [Fecha de consulta: 10 de agosto de 2008] http://sei.iscte.pt/sei.html
• Burrows. R, Nettleton, S. & Pleace, N. (2000). Virtual community care? Social policy and the mergence of computer mediated social support. Information, Communication & Society, 3(1), 95-121.
• Castells, M. (2003). La Era de la Información. Volumen 2. El poder de la identidad. Madrid: Alianza Editorial.
• Castells, M., Tubella, I. et al. (2002). La Sociedad Red en Catalunya. Informe de Investigación I. [artículo en línea]. UOC. [Fecha de consulta: 17 de enero de 2006]. http://www.uoc.edu/in3/pic/esp/pdf/pic1.pdf
• Castells, M. (2005). La Era de la Información. Volumen 1. La Sociedad Red. Madrid: Alianza Editorial.
• Castells, M. (2006). Informacionalismo, Redes y Sociedad Red: una propuesta teórica. En: Castells, M. (ed.) (2006). La sociedad red: una visión global. Madrid: Alianza Editorial.
• Castells, M. (2006a). La Era de la Información. Volumen 3. Fin de Milenio. Madrid: Alianza Editorial.
• Castells, M., Tubella, I. et al. (2007). La transición a la sociedad red. Barcelona: Editorial Ariel – Editorial UOC.
• Castells, M., Lupiáñez, F. et al. (2007). Modernització tecnològica, canvi organitzatiu i servei als usuaris en el sistema de salut de catalunya. Informe de Investigación. [artículo en línea]. UOC. [Fecha de consulta: 31 de agosto de 2008]. http://www.uoc.edu/in3/pic/cat/salut/informe.html
• Chaudhry, B.; Wang, J., et al. (2006). Systematic Review: Impact of Health Information Technology on Quality, Efficiency, and Costs of Medical Care. Annals of Internal Medicine. 144: 742-752.
• Chew, F., Grant, W. & Totes, R. (2004). Doctors On-line: Using Diffusion of Innovations Theory to Understand Internet Use. Family. Medicine, 36(9), 645-650.
• Cline, R.J. & Haynes, K.M. (2001). Consumer health information seeking on the Internet: the state of the art. Health Education Research, 16(6), 671-692.
• Comisión Europea (2004). e-Health - making healthcare better for European citizens: An action plan for a European e-Health Area. Brussels, 30.4.2004 COM (2004) 356 final <http://europa.eu.int/information_society/doc/qualif/health/COM_2004_0356_F_EN_ACTE.pdf>
• Coulter, A. (2002). After Bristol: putting patients at the center. British Medical Journal, 324, 648-651.
• Crawford, S. (2003). Internet Pharmacy: Issues of Access, Quality, Costs, and Regulation. Journal of Medical Systems, 27(1), 57–65.
• Crawford, M., Rutter, D., et al. (2002). Systematic review of involving patients in the planning and development of health care. British Medical Journal, 325(7275), 1263.
• Cullen, R.J. (2002). “In search of evidence: family practicionaers’ use of Internet for clinical information”. Journal of the Medical Library Association, 90(4), 370-379.
• Curran, M.A, & Curran, K.E. (2005). The E-Health Revolution: Competitive Options for Nurse Practitioners as Local Providers. Journal of the American Academy of Nurse Practitioners, 17(12), 495–498.
• Cutler, D. & McClellan, M. (1996). The determinants of Technological Change in Heart Attack Treatment. Working Paper 5751, New Working Paper Series. National Bureau of Economic Research.
D
• Danzon, P.M. & Furukawa, M. (2001). e-Health: Effects of the Internet on Competition and Productivity in Health Care. In: Litan RE, Rivlin AM (eds) The Economic Payoff from the Internet Revolution. Internet Policy Institute, Washington.
• Darbyshire, P. (2004). ‘Rage against the machine?’: nurses’ and midwives’ experiences of using Computerized Patient Information Systems for clinical information. Journal of Clinical Nursing, 13(1), 17–25.
• De Souza, C. & S., Preece, J. (2004). A framework for analyzing and understanding online communities. Interacting with Computers, The Interdisciplinary Journal of Human-Computer Interaction. (accepted, in press). [artículo en línea]. University of Maryland, Baltimore County. [Fecha de consulta: 26/05/2006]. http://www.ifsm.umbc.edu/~preece/Papers/Framework_desouza_preece2003.pdf
• Della, V. (2001). What is e-Health (2): The death of telemedicine?. Journal of Medical Internet Research. 3(2):e22.
• Departament de Salut. (2003). Llibre blanc de les professions sanitàries a Catalunya. Generalitat de Catalunya.
• Departament de Salut. (2006). Encuesta de salud de Catalunya 2006. Generalitat de Catalunya.
• Departament de Salut. (2007). Salut Salut en Xifres. Generalitat de Catalunya.
• Departament de Salut. (2008). El pressupost de Salut. Generalitat de Catalunya.
• Diaz, J., Griffith, R., et al. (2002). Patients’ Use of the Internet for Medical Information. Journal of General Internal Medicine, 17(3), 180–185.
• Dickerson, S. (2006). Women’s Use of the Internet: What Nurses Need to Know. Journal of Obstetric, Gynecologic, & Neonatal Nursing, 35,151–156.
• Dillman, D. A. (2000). Mail and Internet Surveys. The Tailored Design Method. Canada: John Wiley & Sons.
• Doceur, E. & Oxley, H. (2004). Health-System Reform: Lessons from Experience. In: OECD. (2004). Towards High- Performing Health Systems. Policy Studies. Paris: OECD
• Dolan, G., Iredale, R., Williams, R. & Ameen, J. (2004). Consumer use of internet for health information: a survey of primary care patients. International Journal of Consumer Studies, 28(2), 147-153.
• Dubois, C., Mckee, M. & Nolte, E. (eds.) (2006). Human resources for health in Europe. [online book]. European Observatory on Health Systems and Policies. Open University Press. [Retrieved: 30/08/2006]. <http://www.euro.who.int/observatory/Publications/20060112_1>
• Dubos, R. (1959). Mirage of Health: Utopias, Progress & Biological Change. New York: Rutgers University Press 1987.
E
• eEurope (2002). Accessibility of Public Web Sites and their Content. COM(2001) 529 http://europa.eu.int/eur-lex/es/com/cnc/2001/com2001_0529es01.pdf
• eEurope (2002). Criterios de calidad para los sitios web relacionados con la salud. Bruselas, 29.11.2002. COM(2002) 667 final http://europa.eu.int/eur-lex/lex/LexUriServ/LexUriServ.do?uri=COM:2002:0667:FIN:ES:PDF [Acceso: 01/06/07]
• e-Health - making healthcare better for European citizens: An action plan for a European e-Health Area. Brussels, 30.4.2004 COM (2004) 356 final http://europa.eu.int/information_society/doc/qualif/health/COM_2004_0356_F_EN_ACTE.pdf
• e-Health Ministerial Declaration, 22 May 2003. http://europa.eu.int/information_society/eeurope/ehealth/conference/2003/doc/min_dec_22_may_03.pdf
• Empirica (2003). SIBIS Pocket Book 2002/03. Measuring the Information Society in the EU, the EU Accession Countries, Switzerland and the US. http://www.sibis-eu.org/files/Sibis_Pocketbook_updt.pdf
• Estarbrooks, C.A., O`Leary, K.A., Ricker, K.L & Humphrey, C.K. (2003). The Internet and the access to evidence: how nurses positioned? Journal of Advanced Nursing, 42(1), 73–81.
• EUROPA – Europe´s Information society Thematic Portal. eEurope 2005. eHealth. http://europa.eu.int/information_society/eeurope/2005/all_about/ehealth/index_en.htm
• Europeans and the sources of information about health. Eurobarometer 58. http://europa.eu.int/comm/health/ph_information/documents/eb_58_en.pdf
• eUSER. (2005). eUSER population survey. [online] [Fecha de consulta: 8 de enero de 2007] http://www.euser-eu.org/Document.asp?MenuID=68
• Eysenbach, G. (2000). Recent advances: Consumer health informatics. British Medical Journal, 320(7250), 1713-1716.
• Eysenbach, G. (2001). What is e-health?, Journal of Medical Internet Research, 3(2), e20). http://www.jmir.org/2001/2/e20/ [7 May 2008].
• Eysenbach, G. & Wyatt, J. (2002). Using the Internet for Surveys and Health Research. Journal of Medical Internet Research, 4(2):e13 <URL: http://www.jmir.org/2002/2/e13/>
• Eysenbach, G. (2002). Infodemiology: the epidemiology of (mis)information. American Journal of Medicine, 113(9), 763–765.
• Eysenbach, G. & Köhler, C. (2002). How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews. British Medical Journal, 324(7337), 573-577.
• Eysenbach, G., Powell, J., et al. (2002). Empirical Studies Assessing the Quality of Health Information for Consumers on the World Wide Web. A systematic Review. Journal of the American Medical Association, 287(20), 2691-2700.
• Eysenbach, E. (2003). The impact of the internet on cancer outcomes. CA: A Cancer Journal for Clinicians, 53(6), 356-371.
• Eysenbach, G., Powell, J., Englesakis, M., Rizo, C., & Stern, A. (2004). Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. British Medical Journal, 328(7449), 1166-1172.
• Eysenbach, G. (2005). Patient-to-Patient Communication: Support Groups and Virtual Communities. In: Lewis D, Eysenbach G, Kukafka R, Zoë P, Jimison H. (eds) Consumer Health Informatics. Informing Comsumers and Improving Health Care. Springer, USA.
F
• Ferguson, T. (2000). Online patient-helpers and physicians working together: a new partnership for high quality health care. British Medical Journal, 321(7269), 1129-1132.
• Ferguson, T. & Frydman, G. (2004). The first generation of e-patients. British Medical Journal, 328(7449), 1148–1149.
• Ficapal, P. (2007). TIC, treball i competències professional: el canvi tècnic esbiaixador d’habilitats. Document de treball per al Seminari Interdisciplinar del Proyecte Internet Catalunya.
• Fieschi, M. (2002). Information technology is changing the way society sees health care delivery. International Journal of Medical Informatics, 66(1-3), 85–93.
• Figueres, J., Mckee, M., Cain, J. & Lessof, S. (eds.) (2004). Health systems in transition: learning for experience. [online book]. European Observatory on Health Systems and Policies. [Retrieved: 30/08/2006] <http://www.euro.who.int/document/E83108.pdf>
• Finch, T., May, C., Mort, M. & Mair, F. (2006). Telemedicine, Telecare, and the Future Patient: Innovation, Risk and Governance. En: Webster, A. (2006). New Technologies in Health Care. Challenge, Change and Innovation. Palgrave Macmillan, New York, Health, Technology and Society Series.
• Flash Eurobarometre 126. (2002). MIS Médecins généralistes. [online report] EUROSTAT. [Fecha de consulta: 17 de enero de 2006]. <http://europa.eu.int/comm/public_opinion/flash/fl126_fr.pdf>
• Florin, D. & Dixon, J. (2004) Public involvement in health care. British Medical Journal, 328(7432),159–161.
• Foucault, M. (1972) . The Archaeology of Knowledge. London: Tavistock Publications.
• Fox, S., Rainie, L., et al. (2000). The online health care revolution: How the Web helps Americans take better care of themselves. PEW Internet & American Life Project. [Fecha de consulta: 8 de enero de 2007]. http://207.21.232.103/pdfs/PIP_Healthtopics_May05.pdf
• Fox, S. (2002). Vital decisions. [artículo en línea]. PEW Internet & American Life Project. [Fecha de consulta: 5 de octubre de 2006]. http://www.pewinternet.org/PPF/r/59/report_display.asp
• Fox, S. (2003). Internet Health Resources. [artículo en línea]. PEW/INTERNET. [Fecha de consulta: 17 de enero de 2006]. <http://www.pewinternet.org/pdfs/PIP_Health_Report_July_2003.pdf>
• Fox, S. (2004). Prescription Drugs Online. [artículo en línea]. PEW Internet & American Life Project. [Fecha de consulta: 5 de octubre de 2006]. http://www.pewinternet.org/pdfs/PIP_Prescription_Drugs_Online.pdf
• Fox, S. (2005). Health Information Online. [artículo en línea]. PEW Internet & American Life Project. [Fecha de consulta: 5 de octubre de 2006].
http://www.pewinternet.org/pdfs/PIP_Healthtopics_May05.pdf
• Fox, S. (2006). Online Health Search 2006. [artículo en línea]. PEW Internet & American Life Project. [Fecha de consulta: 8 de enero de 2007]. http://www.pewinternet.org/pdfs/PIP_Online_Health_2006.pdf
• Freeman, C.; Soete, L. (1994). Work for All of Mass Unemployment? Computerised Technical Change into the Twenty-first Century. London: Pinter. En: Ficapal, P. (2006). “TIC, treball i competències professional: el canvi tècnic esbiaixador d’habilitats”. Documento de trabajo para el Seminario PIC (23/11/2006).
• Freeman, R. (2002). The Health Care State in the Information Age. Public Administration, 80(4), 751-767.
• Fuchs, V. (1996), Economics, Values and Health-Care Reform. American Economics Review. March, 1-24.
• Fundación Farmaindustria. (2005). El paciente en España. Mapa nacional de asociaciones de pacientes. [artículo en línea]. Farmaindustria. [Fecha de consulta: 26/05/2006]. http://www.farmaindustria.es/farmaweb/7pb43811prod.nsf/9EE803F8F469CA5EC1256E69005716D3/$FILE/pacientes_def_marzo04.pdf
G
• Gagliardi, A. & Jadad, A. (2002). Examination of instruments used to rate quality of health information on the internet: chronicle of a voyage with unclear destination. British Medical Journal, 324(7337), 569-573.
• García, L. (2003). Extraer y visualizar información en Internet: el Web Mining. Gijón, Ediciones TREA.
• García-Sempere, A. & Artells, J. (2005). Organización, funcionamiento y expectativas de las organizaciones representativas de pacientes. Encuesta a Informadores clave. Gaceta Sanitaria, 19(2), 120-6.
• Gaster, B., Knight, C.L., DeWitt, D.E., Sheffield, J.V., Assefi, N.P. & Buchwald, D. (2003).Physicians’ use of and attitudes toward electronic mail for patient communication. Journal of General Internal Medicine, 18(5), 385-389.
• Gelijns, A. & Rosenberg, N. (1994). The dynamics of technological change in medicine. Health Affairs, 13(3):28–46.
• Gerber, B.S. & Eiser, A.R. (2001). The Patient-Physician Relationship in the Internet Age: Future Prospects and the Research Agenda. Journal of Medical Internet Research, 3(2),e15.
<URL: http://www.jmir.org/2001/2/e15/>
• Gerhardt, D., Pola, L. & Goffart, M. (2006). Health and Ageing in the Knowkedge Society: Emplyment, Social cohesion and and e-Health Potential. [online working paper]. European Commission. [Retrieved: 30/08/2006]. <http://ec.europa.eu/employment_social/knowledge_society/docs/healthinks_20060429_esdis.pdf>
• Greaves, D. (2002). Reflections on a new medical cosmology. Journal of Medical Ethics, 28, 81-85.
• Greenhalgh, T.; Robert, G., et al. (2005). Diffusion of Innovations in Health Service Organizations. A systematic literature review. Oxford: Blackwell Publishing
• Giddens, A. (1991). Modernity and self-identity and society in the late modern age. Stanford, CA: Stanford University Press.
• Goldsmith, J. (2000). How Will The Internet Change Our Health System?. [article online]. Health Affairs, 19(1), 148-156. [Retrieved: 30/08/2006]. http://content.healthaffairs.org/cgi/reprint/19/1/148
• Gosling, A.S., Westbrook, JI. & Spencer, R. (2004). Nurses’ use of online clinical evidence. Journal of Advanced Nursing 47(2), 73–81.
• Goodman, J. (2003). Pharmaceutical Industry. In: Cooter, R. & Pickstone, J. Companion to Medicine in theTwentieth Century. London: Routledge.
H
• Hardey, M. (1999). Doctor in the house: the Internet as a source of lay health knowledge and the challenge to expertise. Sociology of Health & Illness, 21(6), 820-835.
• Hardey, M. (2001). “E-Health”: The Internet and the Transformation of patients into consumers and producers of Health Knowledge. Information, Communication & Society, 4(3), 388 – 405.
• Harris, R. & Veinot, T. (2004). The Empowerment Model and Using E-Health to Distribute Informations. Simon Fraser University & the Vancouver Coastal Health Research Institute. [Fecha de consulta: 5 de octubre de 2006] http://www.sfu.ca/act4hlth/pub/working/Empowerment.pdf
• Harrison, S. & Dowswell, G. (2002). Autonomy and bureaucratic accountability in primary care: what English general practicioners say. Sociology of Health and Illness, 24(2), 208-226.
• Hasman, A., Haux, R. & Albert, A. (1996). A systematic view on medical informatics. Computer Methods and Programs in Biomedicine 51(3), 131–139.
• Haux, R. (1997). Aims and tasks of medical informatics. International Journal of Medical Informatics, 44(1), 9–20.
• Haux, R., Ammenwerth, E., Herzog, W. & Knaup, P. (2002). Health care in the information society. A prognosis for the year 2013. International Journal of Medical Informatics 66(1-3), 3–21.
• Haux, R. (2006). Health information systems – past, present, future. International Journal of Medical Informatics, 75(3-4), 268–281.
• Heath, C.; Luff, P. & Sanchez, M. (2003). Technology and medical practice. Sociology of Health & Illnes, 5, 75-96.
• Henwood, F., Wyatt, S., Hart, A. & Smith, J. (2003). “Ignorance is bliss sometimes”: constraints on the emergence of the “informed patient” in the changing landscape of health information. Sociology of Health & Illness, 25(6), 589-607.
• Herxheimer, A. (2003). Relationships between the pharmaceutical industry and patients’ organisations. British Medical Journal 326(7400),1208.
• Horrigan, J.B. (2007). The Pew Internet & American Life Project: A Typology of Information and CommunicationTechnology Users. [Fecha de consulta: 27 de septiembre de 2007].
http://www.pewinternet.org/quiz/quiz.asp
I
• INE. (2006). Instituto Nacional de Estadística en Encuesta sobre Equipamiento y Uso de Tecnologías de la Información y Comunicación en los hogares. http://www.ine.es/inebase/cgi/um?M=%2Ft25%2Fp450&O=inebase&N=&L=
• INE. (2007). Instituto Nacional de Estadística en Encuesta sobre Equipamiento y Uso de Tecnologías de la Información y Comunicación en los hogares. http://www.ine.es/daco/daco42/techog/evalfr07.pdf
• Introna, L. & Nissenbaum, H. (2000). Shaping the Web: Why the Politics of Search Engine Matters. Information Society, 16, 169-185.
• Istepanian, R., Philip, N. & Wang, X.H. (2004). Non-Telephone Healthcare: The Role of 4g and Emerging Mobile Systems for Future m-Health Systems. Studies in health technology and informatics,103, 465-70.
J
• Jadad, A. & Gagliardi, A. (1998). Rating health information on the Internet: navigatin to knowledge or to Babel. Journal of the American Medical Association, 279(8), 611-614.
• Jadad, A., Rizo, C. & Enkin, M. (2003). I am a good patient, believe it or not. British Medical Journal, 326(7402), 1293-1295.
• Jadad, A.R. & Delamothe, T. (2004). What next for electronic communication and health care? British Medical Journal 328(7449), 1143–1144.
• Jadad, A.R., Enkin, M.W., Glouberman, S., Groff, P. & Stern, A. (2006). Are virtual communities good for our health? British Medical Journal, 332(7547), 925–926.
• Jewson, N.D. (1976) ‘The Disappearance of the Sick Man from Medical Cosmology 1770–1870’, Sociology 10(2), 225–44.
• Jones, K., Baggott, R., et al. (2004). Influencing the national policy process: the role of the health consumer groups. Health Expectations, 7, 18-28.
• Jones, S. (1999). Doing Internet Research. Critical Issues and Methods for Examining the Net. California: Sage Publications.
K
• Kassirer, J.P. (2000). “Patients, Physicians, And The Internet”. Health Affairs, 40 (6), 115-23.
• Katz, J.E. & Rice, R.E. (2002). Social Consequences of Internet use. Access, Involvement, and Interacctio. London: The MIT Press.
• Kiley, R. (2002). Does Internet harm health?. British Medical Journal, 324(7331), 238.
• Kivits, J. (2004). Researching the “Informed patient”. The case of online health information seekers. Informations, Communication & Society, 7(4), 510-530.
• Kivits, J. (2006). Informed Patients and the Internet. A Mediated Context for Consultations with Health Professionals. Journal of Health Psychology, 11(2), 269 – 282.
• Kuhn, T. (1962). The Structure of Scientific Revolutions. Chicago: University of Chicago Press.
• Kumar, K. (1995). From post-industrial to post-modern Society new theories of the contemporary world. Cambridge, MA: Blackwell Publishers.
L
• Lehoux, P., Saint-Arnaud, J. & Richard, L. (2004). The use of technology at home: what patient manuals say and tell vs. What patients face and fear. Sociology of Health & Illnes, 26(5), 617-644.
• Lehoux, P. (2006). The Problem of Health Technology. London: Routledge.
• Levy, J. & Strombeck, R. (2002). Health Benefits and Risk of the Internet. Journal of Medical Systems, 26(6), 495-510.
• Lewis, D.; Eysenbach, G., et al. (2005). Consumer Health Informatics. Informing Consumers and Improving Health Care. New York: Springer.
• Longo, D. (2005). Understanding health information, communication, and information seeking of patients and consumers: a comprehensive and integrated model. Health Expectations, 8, 189-194.
•
• Lorenzo, S. & Mira,J.J. (2004). “Are Spanish physicians ready to take advantage of the Internet?” World Hospitals and Health Services, 40(3), 31-5, 41-3.
• Lucas, H. (1999). Information Technology and the Productivity Paradox. Oxford: Oxford University Press.
• Lupton, D. (2003). Medicine as Culture: Illness, Disease and the Body in Western Societies. London: Sage Publications.
M
• Mann, C. & Stewart, F. (2000). Internet Communication and Qualitative Research. A Handbook for Researching Online. London: Sage Publications.
• McCartney, P.R. (2004). Leadership in Nursing Informatics. Journal of Obstetric, Gynecologic, & Neonatal Nursing, 33(3), 371–380.
• McKeown, T. (1979). The Role of Medicine: Dream, Mirage or Nemesis?. Princeton: Princeton University Press.
• McKinlay, J.B. & Marceau, L.D. (2002). The end of the golden age of doctoring. International Journal of Health Services, 32(2), 379-416.
• Meller, D.; Whittier, N. et al. (2002). Social movements identity, cultura, and the state. Oxford: Oxford University Press.
• Meneu, R.(2004). El impacto de las tecnologías de información y comunicación en los profesionales y suarios de la sanidad. En: Ortún Rubio, V. (ed.) (2004).Gestión clínica y sanitaria. Barcelona: Masson.
• Miller, T. E. & Derse, A.R. (2002). Between Strangers: The Practice of Medicine Online. Health Affairs, 21(4), 168-178.
• Morris-Docker, S., Tod, A., Harrison, J.M., Wolstenholme. D. & Black, R. (2004). Nurses’ use of the Internet in clinical ward settings. Journal of Advanced Nursing 48(2), 157–166.
• Murero, M. & Rice, R. E. (2006). The Internet and Health Care. Theory, Research and Practice. Lawrence Erlbaum Associates, New Jersey.
• Murray, E., Lo, B., Pollack, L., Donelan, K., Catania, J., Lee. K., Zapert, K. & Turner, R. (2003). The Impact of Health Information on the Internet on Health Care and the Physician-Patient Relationship: National U.S. Survey among 1.050 U.S. Physicians. Journal of Medical Internet Research, 5(3), e17 <URL: http://www.jmir.org/2003/3/e17/>
• Murray, J.L. & Evans, D.B. (2003). Health Systems Performance Assessment. Debates, Methods and Empiricism. World Health Organization, Geneva.
N
• Napoli, P. (2001). Consumer Use of Medical Information From Electronic and Paper Media. A Literature Review. En: Rice, R.E. & Katz, J.E. (Editors). The Internet and Health Communication. Experiences and Expectations. London: Sage Publications.
• Navarro, V. (Coord.). (2003). L’Estat del Benestar a Catalunya. Col·lecció Societat i Territori. Perspectives, Nº 1. Barcelona: Diputació de Barcelona.
• Nettleton, S. & Burrows, R. (2003). E-scaped medicine? Information, reflexivity and health. Critical Social Policy, 23(2), 165 – 185.
• Nettleton, S. (2004). The Emerge of E-Scaped Medicine?. Sociology, 38(4), 661-679.
• Nettleton, S., Burrows, R., O’Malley, L. & Watt, I. (2004). Health E-Types?. An analysis of the everyday use of the Internet for Health. Informations, Communicationa & Society, 7(4), 531-553.
• Nettleton, S., Burrows, R. & O’Malley, L. (2005). The mundane realities of the everyday lay use of the internet for health, and their consequences for media convergence. Sociology of Health & Illnes, 27(7), 972-92.
• Newhouse, J.P. (1992). Medical Care Costs: How much Welfare Loss?. Journal of Economic Perspectiva, 6, 3-21.
• Nielsen, J. (2000). Usabilidad. Diseño de sitios web. Madrid: Pretince Hall.
• Nielsen, J. & Tahir, M. (2002). Usabilidad de páginas de inicio. Análisis de 50 sitios web. Madrid: Pretince Hall.
• Nwosu, C.R. & Cox, B.M. (2000). The impact of the Internet on the doctor-patient relationship. Health Informatics Journal, 6, 156-161.
O
• OECD. (2004). Information Technology Outlook. [artículo en línea]. OCDE. . [Fecha de consulta: 17 de enero de 2006]. <http://www.oecd.org/dataoecd/20/47/33951035.pdf>
• OECD. (2004). Towards High-Performing Health Systems. OECD, Paris.
• OECD. (2005). Health at a Glance. OECD Indicators 2005. OECD, Paris.
• OECD. (2005). Health Technologies and Decision Making. OECD, Paris.
• OECD. (2007). Health at a Glance. OECD Indicators 2007. OECD, Paris.
• Oh, H., Rizo, C., Enkin, M. & Jadad, A. (2005). What is eHealth (3): a systematic review of published definitions. Journal of Medical Internet Research, 7(1):e1.
P
• Pagliari, C., Sloan, D., Gregor, P., Sullivan, F., Detmer, D., Kahan, J., Oortwijn, W. & MacGillivray, S. (2005). What is eHealth (4): A Scoping Exercise to Map the Field. Journal of Medical Internet Research 7(1), 14.
• Patt, M.R., Houston, T.K., et al. (2003). Doctors who are using email with their patient: a Qualitative exploration [artículo en línea]. Journal of Medical Internet Research, 5(2), e9. [Fecha de consulta: 3 de agosto de 2006]. <URL: http://www.jmir.org/2003/2/e9/>
• Pickstone, J.V. (1993) Ways of knowing: towards a historical sociology of science, technology and medicine. British Journal for the History of Science, 24, 433-58
• Pickstone, J. (2000). Ways of Knowing: A New Science, Technology and Medicine. Manchester: Manchester University Press.
• Pickstone, J. (2003) Production, community and consumption: the political economy of twentieth century medicine. In: Cooter, R. & Pickstone, J. Companion to Medicine in theTwentieth Century. London: Routledge
• Pilat, D. (2006). “The Impacts of ICT on Productivity Growth: Perspectives from the Aggregate, Industry and Firm Level”, a Mas, M; Schreyer, P. (eds). Growth, Capital, and New Technologies. Bilbao: Fundación BBVA, pàg. 113-147.
• Potts, HW.W. & Wyatt, J.C. (2002). Survey of Doctors’ Experience of Patients Using the Internet. Journal of Medical Internet Research, 4(1),e5 <URL: http://www.jmir.org/2002/1/e5/>
• Powell, J. & Clarke, A. (2002). The WWW of the World Wide Web: Who, What, and Why? [artículo en línea]. Journal of Medical Internet Research, 4(1), e4. [Fecha de consulta: 3 de agosto de 2006]. <URL: http://www.jmir.org/2002/1/e4/>
• Powell, J.A., Darvell, M. & Gray, J.A. (2003). The doctor, the patient and the world-wide web: how the internet is changing healthcare. Journal of the Royal Society of Medicine, 96, 74-76.
• Powell, J.A., Lowe, P., Griffiths, F.E. & Thorogood, M. (2005). A critical analysis of the literature on the Internet and consumer health information. Journal of Telemedicine and Telecare,11 (Suppl 1), 41–43.
• Preece, J. (2000) Online Communities: Designing Usability, Supporting Sociability. Chichester, UK: John Wiley & Sons.
Q
• Quennell, P. (2003). Getting a word in edgeways? Patient group participation in the appraisal process of the National Institute for Clinical Excellence. Clinical Governance: An International Journal, 8(1), 39–45.
R
• Rheingold, H. (1996). La comunidad virtual. Una sociedad sin fronteras. Editorial Gedisa. Barcelona, 1996.
• Repullo, J.R. e Iniesta, A. (Ed.). (2006). Sistemas y servicios sanitarios. Madrid: Ediciones Díaz de Santos.
• Rice, R.E. (2001). The Internet and Health Communication: A framework of Experience. In: Rice ER, Katz JE (eds) The Internet and Health Communication. Experiences and Expectations.. Sage Publications, California, pp 1–46.
• Rice, R. & Katz, J. (2001). The Internet and Health Communication. Experiences and Expectations. California: Sage Publications.
• Rico, A. (2000). Health Care System in Transition. Spain. [online report]. European Observatory on Health Systems and Policies. [Retrieved: 30/01/2007] http://www.euro.who.int/Document/E89491.pdf
• Risk A, Dzenowagis J. (2002). Review Of Internet Health Information Quality Initiatives. [artículo en línea]. Journal of Medical Internet Research, 3(4), e28. [Fecha de consulta: 5 de octubre de 2006]. <URL: http://www.jmir.org/2001/4/e28/>
• Rodríguez, M.; Urbanos, R. (2008). Desigualdades sociales en salud. Factores determinantes y elementos para la acción. Barcelona: Elsevier Masson.
• Rokade, A., Kapoor, S., Rao, V., et al. (2002). Has the internet overtaken other traditional sources of health information? Questionnaire survey of patients attending outpatient clinics. Clinical Otolaryngology, 27(6), 526-528.
S
• Saba, V.K. (2001). Nursing informatics: yesterday, today and tomorrow. International Nursing Review, 48(3), 177–187.
• Sacks, M. (2003). Medicine and the Counter Culture. In: Cooter, R. & Pickstone, J. Companion to Medicine in theTwentieth Century. London: Routledge
• Sarria, E. (2000). El “managed care” en el Sistema Sanitari Català. L’assistència conduïda (o gestionada) a Catalunya. Consultado 04/01/2007 < http://www.tdx.cesca.es/TESIS_UB/AVAILABLE/TDX-0411102-100917//TOL63.pdf>
• Scott, T., Mannion, R., et al. (2003) Healthcare Performance and Organisational Culture. Abingdon: Radcliffe Medical Press Ltd.
• Scott, W.R., Ruef, M., et al. (2000). Instituional Change and Healthcare Organizations. Chicago: The University of Chicago Press.
• Seale, C. (2003). Health and media: an overview. Sociolofy of Health & Illness, 25(6), 513-531.
• Seale, C. (2005). New directions for critical Internet health studies: representing cancer experience. Sociology of Health & Illness, 27(4), 515-540.
• Sears, R.L. & Generali, J.A. (2004). Webographies: Guiding Patient Use of the Internet for Health Care Information. Hospital Pharmacy, 39(4), 306–307.
• Séculi, E.; Brugulat, P.; Martínez, V.; Medina, A.; Juncà, S.; Martínez, D.; Tresserras, R. (2003). La planificació per a la salud a Catalunya 1990-2000. En: Salleras, L.; Tresserras, R. (coords). (2003) Avaluació dels objectius per a l’any 2000 del Pla de Salut de Catalunya. Generalitat de Catalunya. Departament de Sanitat i Seguretat Social. Direcció General de Salut Pública. Consultado 04/01/2007 http://www.gencat.net/salut/depsan/units/sanitat/pdf/planificacioavapla.pdf
• Sevilla, F. y Enríquez, R. (2006). Sistemas sanitarios y modelos organizativos. A: Repullao, J.R., Iniesta, J. (ed.) (2006). Sistemas y servicios sanitarios. Madrid: Ediciones Díaz de Santos.
• Sharpe, C.C. (2000). Telenursing: Nursing Practice in Cyberspace. Canada: Auburn House.
• Silber, D. (2003). The Case for eHealth. [online report]. European Commission’s first high-level conference on eHealth. [Retrieved: 30/08/2006].
<http://europa.eu.int/information_society/eeurope/ehealth/conference/2003/doc/the_case_for_eHealth.pdf>
• Smith, R. (1997). The future of healthcare systems. British Medical Journal, 314(7093), 1495-1496.
• Smith, R. (2001). Almost no evidence exists that the Internet harms health. British Medical Journal, 323(7314), 651.
• Spadaro, R. (2003). EUROBAROMETER 58.2 European citizens and sources of information about health. [artículo en línea]. EUROSTAT. [Fecha de consulta: 17 de enero de 2006]. <http://europa.eu.int/comm/health/ph_information/documents/eb_58_en.pdf>
T
• Tachakra, S., Wang, X.H. & Istepanian, R. (2003). Mobile e-Health: The Unwired Evolution of Telemedicina. Telemedicine Journal and E-Healrh, 9(3), 247-257.
• Takeda, H. & Endoh, H. (2002). Commentary on Health care in the information society. A prognosis for the year 2013. International Journal of Medical Informatics 66(1-3), 107–111.
• The Royal Society. (2006). Digital healthcare: the impact of information and communication technologies on health and healthcare. [artículo en línea]. [Fecha de consulta: 27 de febrero de 2006]. http://royalsociety.org/displaypagedoc.asp?id=23835
• Theodosiou, L. & Green, J. (2003). Emerging challenges in using health information from the Internet. Advances in Psychiatric Treatment,.9, 387-396.
• Theofanos, M. & Mulligan, C. (2004). Empowering Patients Through Access to Information. The United State Department of Health and Human Services’ e-health enterprise. Informations, Communication & society, 7(4), 466-490.
• Timmons, S. (2003). Nurses resisting information technology. Nursing Inquiry, 10(4), 257–269.
• Tsai, S. & Chai, S. (2005). Developing and validating a nursing website evaluation questionnaire. Journal of Advanced Nursing, 49(4), 406–413.
• Torrent, J., Lupiáñez, F. (2008). TIC, CONOCIMIENTO Y PRODUCTIVIDAD EN EL SECTOR SANITARIO DE CATALUNYA. UN ESTUDIO DE LA EFICIENCIA SECTORIAL A PARTIR DEL ANÁLISIS INPUT/OUTPUT. Gaceta Sanitaria. 22(2), 10-11.
• Torrent, J., Vilaseca, J., et al. (2008). La empresa red. Barceloa: Editorial Ariel – Editorial UOC.
• Townsend, P.; Davidson, N.; Whitehead. M. (1992). The Black Report and the Health Divide. London: Penguin Books.
• Turner, B.S. (2000). The History of the Changing Concepts of Health and Illness: Outline of a General Model of Illness Categories. In: Albrecht, G.; Fitzpatrick, R.; Scrimshaw, S. (eds). The Handbook of Studies in Health & Medicine. London: Sage Publications.
V
• Valiente, L., Armayones, M., Boixadós, M., Herrero, J., Meneses, J., Suelves, J. M. y Vivas, P. (2002). Salut i qualitat de vida en la societat xarxa: aproximacions conceptuals i proposta metodològica de cerca per Internet. [artículo en línea]. UOC. [Fecha de consulta: 17 de enero de 2006] <http://www.uoc.edu/in3/psinet/docs/publicaciones/working01.pdf>
• Vilarroel, D., Mayer, M.A., et al. (2007). AQUA (Assisting Quality Assessment): a system based on Semantic web and information extraction technologies to support medical quality labelling agencies. Technology and Health Care, 15(5), 368-369.
• Vivas, P., Armayones, M., Boixadós, M., Herrero, J., Meneses, J., Suelves, J. M. y Valiente, L. (2004). Salut i Internet: cerca, temàtica i qualitat del seu contingut. [artículo en línea]. UOC. [Fecha de consulta: 17 de enero de 2006] <http://www.uoc.edu/in3/dt/20374/20374.pdf>
• VV.AA. (2003). La reforma de l’atenció primària a Catalunya. . [artículo en línea]. Fulls Econòmics del Sistema Sanitari. Num. 37. Generalitat de Catalunya. Departament de Sanitat i Seguritat Social . [Fecha de consulta: 05/01/06]. <http://www10.gencat.net/catsalut/archivos/publicacions/publ_periodiques/fulls_37.pdf
• VV.AA. (2002). Informe SEIS. Luces y sombras de la información de salud en Internet. . [artículo en línea]. Sociedad Española de Informática de la Salud. [Fecha de consulta: 17 de enero de 2006]. <http://www.seis.es/jsp/base.jsp?contenido=/jsp/publicaciones/inforseis.jsp&id=5.2&informeid=2&titulo=>
• VV.AA. (2006). Las TIC en la Sanidad del futuro. Madrid: Editorial Ariel. (Col·lecció Fundació Telefónica).
W
• Webster, A. (2002). Innovative Health Technologies and the Social: Redefining Health, Medicine and the Body. Current Sociology, 50(3), 443-457.
• Webster, A. (2006). New Technologies in Health Care. Challenge, Change and Innovation. Health, Technology and Society. New York: Palgrave Macmillan.
• Webster, C. (2003). Medicine and the Welfare State. In: Cooter, R. & Pickstone, J. Companion to Medicine in theTwentieth Century. London: Routledge
• Weiner, M. & Biondich, P. (2006). The Influence of Information Technology on Patient-Physician Relationship. Journal of General Internal Medicine, 21, S35-39.
• Welch, R.J. (2003). At the intersection of micro and macro: opportunities and challenges for physician-patient communication research. Patient Education and Counseling, 50, 13-16.
• Whitten, P. & Cook, D. (2004). Understanding Health Communication Technologies. Jossey-Bass, San Francisco.
• Wilson, P. & Risk, A. (2002). How to find the good and avoid the bad or ugly: a short guide to tools for rating quality of health information on the internet Commentary: On the way to quality. British Medical Journal, 324(7337), 598-602.
• Wilson, P., Leitner, C. & Moussalli, A. (2004). Mapping the Potential of eHealth, Empowering the citizen through eHealth tools and services. Maastricht: European Institute of Public Administration.
• Winker, M.A., Flanagin, A. et al. (2000). Guidelines for Medical and Health Information Sites on the Internet: Principles Governing AMA Web Sites. Journal of the American Medical Association, 283(12),1600–1606.
• World Health Organization. (2000).The world health report 2000 - Health systems: improving performance. [online report]. World Health Organization. [Retrieved: 30/08/2006]. <http://www.who.int/entity/whr/2000/en/whr00_en.pdf>
• World Health Organization. (1946). Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference. New York, 19-22 June, 1946; signed on 22 July 1946 by the representatives of 61 States (Official Records of the World Health Organization, no. 2, p. 100) and entered into force on 7 April 1948.
• Wyatt, J. (2000). Information for patients. Journal of The Royal Society of Medicine, 93, 467-471.
• Wyatt, J.C. (1997). Commentary: measuring quality and impact of the world wide web. British Medical Journal, 314(7098), 1879-1881.
• Wyatt, S., Henwood, F., Hart, A. & Smith, J. (2005). The digital divide, health information and everyday life. New Media & Society, 7(2), 199-218.
X
• Xie, B., Dilts, D. & Shor, M. (2006). The physician-patient relationship: The impact of patient-obtained medical information. Health Economics, 15, 813-833.
Z
• Zachary, G. (2000). The global me, New cosmopolitans and the competitive edge: picking globalism’s winners and losers. London: Nicholas Brealey Publications.
• Zehnder, S., Bruppacher, R., Ruppanner, H. & Hersberger, E.K. (2004). Swiss Community Pharmacies’ on the Web and Pharmacists’ Experiences with E-commerce: Longitudinal study and Internet-based questionnaire survey. Journal of Medical Internet Research, 6(1), e9.